I published this story on July 24, and then, the next day I realized that there were a couple of typos. Augh!! I quickly pulled it back to fix them. And in the cruel way cyberspace sometimes acts, it erased the whole first paragraph and refused to give it back. It took me almost two weeks to come back and fix it. But it's important to have this little snapshot of my sweet boy at this time in his life.
Most heartbreakingly, it appears that he sometimes doesn't know his beloved sister. She has been his protector, his safe place, his happiest moments all of his life. Every day when Zuza and I would return from work, he would come alive, greeting her hysterically, wanting to play, dashing around in absolute glee. (She, of course, would look at him with a certain alpha dog disdain. "Yeah, whatever.") But she then would spend an inordinate amount of time cleaning his ears, washing his face, being the Mom, all the while cuddling with him. Now he growls and lunges at her, often enough that we seldom leave them together unsupervised. It is most heartbreaking that it really scares her. She's completely blind now, so she can't tell if he is growling at her or at the cats and it is much harder to protect herself, so she tries to hide. The most unnerving thing that he does, however, is that he hallucinates. He snarls and growls at invisible things. Sometimes he lunges. It honestly shakes me to the core.
Then he gets his medication, which is mostly for pain, arthritis and otherwise, and an appetite stimulant. Then he's back!! Our old Lukey! He wants to play with his favorite toy, Foxy; he's hungry, he's hopping up and down!! He's funny and happy and wants to be with me every second.
And now he wanders. If he was a human, we would be locking the doors and making all of the cabinets impossible to open. He has forgotten how to back up, so if he runs into an obstacle he gets stuck there. Yesterday, in the house, he walked into teeny little places from which there was no return, squeezed between a piece of furniture and the wall. One time, I was just outside disinfecting the mail--yes, I still do that--and he was in the living room between a box of record albums and a wooden dog crate, and he just started screaming at the top of his lungs. I'm outside yelling--because he's really deaf now, "I'm coming Lukey! It's okay! You're all right!" as I dash back in. The next time, I was in the kitchen and heard very loud rustling and crunching noises. He was in a space that was perhaps an inch and a half wide, behind a wooden chest where an egg carton, (waiting to be filled by our chickens), had slipped. Once again, there was no reason for him to be there. And once again he was completely foiled by the obstacle. I spent the rest of the day with him in a pouch, strapped to me. The new normal. And how long will this normal last? I don't know.
Living with loved ones who are slowly sliding down the path of dementia is an excruciating business. We learned this lesson thanks to our friend, Susan. In the end, she made her own decisions about how and when she wanted to die. With Lukas, this decision, like most of the others in his life, lies with us and the forces of the universe. I hope that I can be strong enough to bear the weight of the life of this waif, my boy, my little man